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The Universal House of Justice was saddened to receive your letter of 21 September 1993 conveying the fact that you have been diagnosed as having AIDS. It has asked that we commend the manner in which you have confronted this test in your life and your motivation to use the experience as a means to assist other Bahá'ís in dealing with homosexuality and AIDS. You are encouraged to offer your services to your National Spiritual Assembly in order that it may provide any guidance to you it deems appropriate in your proposed plan to assist others in the community in coping with these afflictions. You are assured of the prayers of the Universal House of Justice in the Holy Shrines for the realization of your aspirations to serve the Cause, and for the comfort of yourself and others who are afflicted with AIDS. (From a letter written on behalf of the Universal House of Justice to an individual, 14 October 1993)
Your email of 18 September
1998 inquiring about the issue of condom use, as specifically related to
health issues, has been received, and we are to provide the following
reply.
(From a letter written on
behalf of the Universal House of Justice to an individual believer,
13
October 1998)
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AIDS (which stands for Acquired Immunodeficiency Syndrome) is a very frightening subject for many people. Part of the fear comes from not understanding or misunderstanding a lot of the information about this condition. That’s not surprising because so much of the information is confusing. To cut through some of the confusion, we will provide the facts in simple, straightforward language.
What is the difference between HIV and AIDS?
HIV stands for human immunodeficiency virus. It is the organism that leads to the condition we call AIDS. It does this by attacking and damaging the body’s immune and nervous systems. The nervous system controls our movements (including the beating of our hearts and the pumping of our lungs) and the immune system fights off infections and diseases. Once someone becomes infected with HIV, the virus slowly destroys the immune system so the body cannot fight off even mild problems and the person is likely to get many different diseases. When the virus progresses to the point where the infected person is very sick, we call this AIDS. There is no cure for HIV yet, but scientists hope to find one or to develop a vaccine that will protect people from HIV in the same way that measles vaccine prevents a person from getting measles. In the meantime, our only defence is prevention.
How does a person get infected?
HIV is passed from person to person through body fluids. A person catches the virus in the following ways:
Since November 1985, all blood products in Canada have been tested for HIV, so infection from blood transfusions has become rare. A person cannot get infected by:
Testing for HIV infection
Once a person has been exposed to HIV, the body begins to produce antibodies to try to fight off the virus. A blood test will tell if someone has these antibodies. If so, it means that the person has come in contact with the virus and has been infected. However, it can take up to six months after the infection for the antibodies to show up in the blood, so a negative test result doesn’t necessarily mean that a person is in the clear. Remember, the test only tells whether someone has been infected with the virus; it does not mean that the person has AIDS. The HIV test should always include counselling to help people understand the results, how to protect their own health, and how to keep from spreading the infection. People who are HIV-positive (that is, people who have been infected with the virus) may look and feel well for years. Even during this time though, they can pass the virus to others.
Preventing an HIV infection
The best way to make sure you don’t get the virus is to avoid those things that put you at risk of coming in contact with it. Here are some tips:
Treating HIV & AIDS
At the heart of HIV treatment is a method called HAART, which stands for Highly Active Antiretroviral Therapy. It is an intensive treatment that requires a lot of cooperation and active participation by the patient. To work successfully, the very potent, very active anti-HIV drugs must be taken according to very specific schedules and often must be coordinated with what food is eaten and when it is eaten. If the drugs aren’t taken in exactly the right way, the virus may become resistant to the drugs and, in fact, to other drugs that might be tried in the future. There are several different types of drugs used to treat HIV infection and they all work by interfering with the virus’s ability to reproduce itself. This may slow the spread 9f HIV in the body and lengthen the time before other diseases appear, but it will not prevent the spread of HIV to other people. Because HIV can become resistant to the drugs, many doctors use a combination of several drugs to decrease the amount of the virus in the blood. A new drug designed to enhance the immune system’s ability to fight HIV infection, the Salk HIV vaccine, is currently being studied. It is a therapeutic vaccine, which means it helps the body fight the infection, but it does not prevent infection the way the measles vaccine does. Researchers are also studying several other treatment options that they hope will eventually lead to a cure.
Caring for an infected person
If you are caring for someone with HIV or AIDS, it is important for you to take care of your own health for two very important reasons:
Here are some other tips that will help.
For more information
If you have any questions about HIV infection or AIDS, your pharmacist is always available to help you. Other good sources of information are:
Canadian Foundation for AIDS Research 165 University Ave., Suite 901 Toronto, ON M5H 3B8 Phone: (416) 361-6281 Toll free: 1-800-563-2873 Fax (416) 361-5736 Website: www.canfar.com
Canadian National AIDS Clearinghouse 1565 Carling Ave., Suite 400 Ottawa, ON K1Z 8R1 Phone (613) 725-3769 Toll free: 1-800-874-2572 Fax: 1-800-874-2572 Fax: (613) 725-9826 Website: www.cpha.ca
This information should not be used as a substitute for the medical care and advice of your doctor. There may be variations in treatment that your doctor may recommend based on individual facts and circumstances.
This document is based on a pamphlet prepared by Shoppers Drug Mart® www.shoppersdrugmart.ca
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Guilty Victims: A Bahá’í Living with AIDS By Marc Holcomb As a “guilty victim” of AIDS, it has been painful to recall specific incidents of victimization or discrimination. I could discuss people who have called themselves my friends and who no longer call or visit since learning of my illness. I could describe how it feels to watch someone else’s eyes as they look at me and slowly realize with horror that I have AIDS. Finally, I could write about families who refuse to touch a dish that I have brought to a family picnic because the food was prepared with my own hands. But while these experiences cut, some more deeply than others, they are not my problem. It will not be me who answers to God for these acts of unkindness. I will, instead, be judged on my response. I would like to write about the homophobia I had internalized and the sense of guilt that I had felt, first, for being gay and, secondly, because I have AIDS. I have been a Bahá'í for most of my adult life and I have been gay even longer. I give myself the label of “gay” not because I believe it adequately defines me, but because society insists that I am gay due to my life experiences. “Gay” is a convenient label for this venue even though it carries with it meanings that do not apply to me. I prefer to define myself primarily as a spiritual being and by my Faith. Then I became a Bahá’í; my Faith became the most important thing in my life. In order to protect myself from condemnation, I fine-tuned the coexistence of my two selves. When I became a Bahá'í, I was told immediately that I could not reveal my homosexuality without jeopardizing my membership. And so, while I knew many gay Bahá'ís, most of us lived as two people. Whatever guilt or shame I felt before I became a Bahá'í intensified a thousand-fold after nearly twenty years of pretending to be a child of God and someone loved by Him. At the point when I was ready to give up on the struggle, to give in to my label, I was diagnosed with AIDS. As much as I thought about acquiring AIDS before my diagnosis, as much as I figured if anyone deserved to have AIDS it was me, when my fears became reality, I still managed to feel more ashamed than I have ever felt in my life. But ironically, almost immediately after my diagnosis I discovered that I did not care about the ramifications of this world knowing that I have AIDS. Having been ready to give in to the label, I instead gave in to my Faith. Quite suddenly I became secure in my love for Bahá'u'lláh. I accepted myself as a child of God and as someone loved by Him. I refused to struggle and die alone. Too many of my friends had done so already. Once I realized this, I saw no option except to be honest and to allow the Bahá'ís the opportunity to join me on this journey. There exists in the Bahá'í community a lot of ignorance about AIDS and about homosexuality. The two are not the same: one does not necessarily follow the other. To make that assumption is nothing more than a bigoted judgment. Bahá'u'lláh strongly condemns prejudice and discrimination against anyone. Bahá'ís work very hard to eliminate discrimination between the races of mankind. We work hard to demonstrate the equality of women and men. A careful review of the sacred Writings reveals that prejudice against anyone is condemned and while the abysmal state of race relations in this country continues to be the most pressing issue, we can not fully be Bahá'ís if we harbor prejudice against any segment of society nor if we perpetuate the discrimination of those groups. With AIDS, we have accepted the general perception of western culture that it is a gay disease. We forget that in the rest of the world AIDS has a different face. We forget also that Bahá'u'lláh has revealed His truth for all of mankind, especially those of us forced to the fringes of society by prejudice and bigotry. We must begin the process of acceptance so that others will not be similarly forced into a dual existence, an existence that puts them at risk of infection; so that others will not be forced into a life of needless pain, guilt and self-loathing that holds them back from their spiritual reality and the rewards of a life given in sacrifice to the service of mankind. It is difficult to be a Bahá'í and gay. I am committed to the laws of my religion that prohibit homosexual behavior. I am committed to trying to understand what this means to someone like me. The predominant thought current in our culture is to accept a gay life-style and to condemn the religions that would prohibit it. I have accepted that God is All-Knowing and so I must believe that there are reasons for this prohibition in the Bahá'í Faith. I also think that there is too much about homosexuality that we do not understand. Somewhere between God's law and our ignorance, I must find a place to exist. I think I have found it, actually, but it is not a popular place to be. God never said life on this planet was easy. It has been difficult for me to pull these thoughts together, so afraid have I been of painting my beloved Bahá'í community in a bad light. Much of my trepidation through the years was out of the fear of reprisal after years of conditioning. I will never know how my community would have reacted because I never before gave them the opportunity. It took a long time for me to convince myself that the presentation of fact is something different from the passing of judgment. I do not judge my community. I say only that the time to act is overdue. It is time to draw on our strength, our infinite capacity for compassion. We must move forward.
Author: Marc Holcomb The ideas and opinions expressed in this document are those of the author. The document has been reviewed to be consistent with BNASAA guidelines, but the ideas expressed do not necessarily reflect the opinions or thinking of the BNASAA Coordinating Committee.
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How does AIDS, personally, affect you? I've been very blessed in my life. God has granted me the bounty of loving and being loved by some incredibly beautiful souls. A number of the amazing people in my life have died of AIDS. A number are living with HIV. So, whether I'm personally HIV positive or HIV negative, I am a person who is living with AIDS. I pray every day that I can do something about AIDS. If I can't find a cure, then hopefully I can help end the confusion AIDS often brings with it, or prevent some of the suffering it often brings. Or perhaps there's something else I can do. I spent nine days in Haifa praying at the Shrines for a cure. I pray for my friends every night. And one thing I've learned through all this is that prayer should involve listening to God as well as talking to Him. And I've learned that I stress out if I don't leave things to God, which doesn't mean I don't take action, but does mean that I can not let myself forget Who the Divine Physician is. There's no doubt about it: AIDS offers us seemingly innumerable challenges. Challenges, which as we Bahá'ís know, are incredible opportunities for growth and advancement to the presence of Bahá'u'lláh. God promises us, promises, that He will "never cause tribulations to befall any soul unless" He desires "to exalt his station in" His "celestial Paradise." (Bahá'í Prayers, p. 194) This pandemic is helping bring humility into focus for those affected. For we are not in control, and often don't have the answers we feel we need. This gives us an opportunity to say to God, "I lay all my affairs in Thy hand," (Bahá'í Prayers, p. 152) and examine the true meaning of those words. Along with the challenges that AIDS sets in front of our faces are some incredible opportunities and some perhaps surprising insights. But the challenges, as well as the opportunities, are on so many different levels. Some, when you think about it, seem quite obvious. Others maybe less so. The thing is, though, that a Bahá'í response to AIDS is simply a reflection of the Bahá'í response to life...to humanity. Approaching AIDS related issues, responding to people living with AIDS, responding to people affected by AIDS is an opportunity for us to be true Bahá’ís - in a microcosm. We need, though, to be able to expand this and respond to all of humanity, in every context, as true Bahá’ís. When we look at the microcosm that AIDS brings to focus, we're seeing so much more than simply an opportunity to reach out to the sick. All of a sudden we're faced with the opportunity to educate, to be examples of patience, and, most importantly, to love. "AIDS brings into focus the interaction between individual responsibility and societal responsibility for ethical living." (Living with AIDS, Miriam E. Cameron, p. XVII) When I look at how AIDS has affected the world I see many pieces to an enormously complex and often frustrating puzzle. First and foremost I see a need for love, which of course means an opportunity to love. A bittersweet piece of the puzzle, for sure. Think about it, what's going to motivate someone more than love? Motivate them in physical reality...motivate them in spiritual reality. After all, "until love takes possession of the heart, no other divine bounty can be revealed in it." ('`Abdu'l-Bahá). A 1994 time magazine article reported the findings of various scientific studies which concurred that "...love rests firmly on the foundations of evolution, biology and chemistry," and that love (Anastasia Toufexis, The Right Chemistry, Time Magazine, Feb. 1994). No wonder 'Abdu'l-Bahá exhorted us to "...order your lives with the first principle of divine teaching, which is love." ‘Abdu'l-Bahá's example of love and service leave us with no doubt that we must reach out to those in need, and that we need to be compassionate and giving. We, as Bahá’ís, are told to visit the sick. We, as lovers of Bahá'u'lláh, are told to love each other. It's not simply a Divine suggestion. It's a requirement, at least, that we try. So, keeping that in mind, how should we respond to someone who says, as a fellow Bahá'í said to a friend of mine, "AIDS is God's way of dealing with the perverts." Keeping in mind that "the path to guidance is one of love and compassion, not of force and coercion," (The Báb) I don't think that any swear word, which comes to mind, is an appropriate response. And avoiding that person isn't going to help them or you in any way. Loving that person, however, might just help them in their process of spiritual transformation. We were created noble. Bahá'u'lláh tells us that. "Noble have I created thee..." (Hidden Words, p.22.) So that means that we must recognize not only our own nobility, but also the nobility of each person we encounter. If I recognize, truly recognize, my own nobility, then I can't treat others with anything less than respect. And if I recognize that everybody shares that nobility with me then it goes without saying that I should treat them as I would anyone in whom I see a reflection of my Lord, remembering that "every good habit, every noble quality belongs to a man's spiritual nature..." (Paris Talks, p.60.) How do we react to someone who has said something as hurtful as that fellow Bahá'í did? Thankfully, Bahá'u'lláh gives us direct guidance. "...An enlightened man of wisdom should primarily speak with words as mild as milk, that the children of men may be nurtured and edified thereby and may attain the ultimate goal of human existence which is the station of true understanding and nobility." (Tablets of Baha'u'llah revealed after the Kitáb-í-Aqdas, p.173.) This is not always an easy task. But definitely something to keep in mind as we find ourselves faced with the prejudices and fears that AIDS often brings to the surface. What would you say? AIDS brings to mind the question, "what kind of person should I be in an unjust society?" (Cameron, p.30) Certainly we can't complacently believe and not take action. "Humanity, through suffering and turmoil, is swiftly moving on towards its destiny; if we be loiterers, if we fail to play our part surely others will be called upon to take up our task as ministers to the crying needs of the afflicted world." (Bahá'í Administration, p.66) If we don't do anything that would be like our saying to God, "Thanks but no thanks." So we have to play our part. We have to love. We have to recognize nobility. But we also have to be proactive. In my reading various studies, papers, commentaries, and the like about AIDS and AIDS-related issues, I'm amazed at how directly the Bahá'í Faith seems to address this pandemic How do the Bahá'í teachings on economics directly relate to the pandemic of AIDS? In some countries, as many as 15% of the population is suspected to be HIV-positive. (Statistics are not accurate because of the many people who are not able or willing to be tested for the virus.) The economic impact of AIDS on these countries is staggering: "economic growth in Africa and Asia is being threatened by the spread of AIDS, cautions the International Food Policy Research Institute. A new study from the group claims that economies are being impaired under the influence of AIDS, because money that would otherwise be invested in education, agricultural research, and other areas is needed to pay for health care. Also, productivity is being lost because the disease claims workers in their prime. 'AIDS will worsen the poverty of poor people by depriving them of their only productive resource--their labor,’ the Institute predicted." (Futurist [01/97-02/97] Vol. 31, Economic Impacts of AIDS, p. 4) "The private sector should get involved because it's losing money. Banks in countries like Uganda are losing out because AIDS is killing so many of the middle managers on whom they have spent money training." (David Ljunggren, Reuters News, 11:48 07-09-96) There's also the cost of raising thousands of children orphaned because their parents have died of AIDS. Until a world economy is established, until we recognize our interdependence on one another, until the realization that the solution to the world's economic crises is spiritual in nature, AIDS will continue to be a major factor in the destruction of the world's economy. Worldwide, AIDS is striking mainly "adolescents, young adults, and people in early middle age: The very people on whom society depends for production and reproduction. These are the men and women who raise the young and care for the old. As they die of AIDS, their elderly are left without support and their children become orphans." Those living with and dying from AIDS "are the ones who grow the crops, work in the mines and factories, run the schools and the hospitals, even govern the country. Largely because of lost productivity... Thailand, for example, has estimated that the AIDS epidemic will cost its economy close to US$ 11 billion by the year 2,000." (Statement by the Joint United Nations Programme on HIV/AIDS, Stockholm, 28 August, 1996.) How do the Bahá'í Teachings on the equality of women and men directly relate to AIDS related issues? A factor that is directly related to the current spread of AIDS, particularly in non-Western societies, is the non-recognition of the equality of men and women. Until the rights of women are recognized, until they are given a voice, until they are allowed an education, the pandemic will not end. Reuters news reported that "AIDS experts...called for a broad-based campaign to fight the disease, saying more effort should be made to give women in the developing world more control over their sexual and reproductive lives. "AIDS rates are highest in the countries of sub-Saharan Africa where prostitution is rife and women are traditionally seen as their husbands' property." (Reuters as cited by the CDC Clearinghouse, 1997) To quote the chief of the UN Population Fund's UN office: "If we do not do something about correcting the imbalances between men and women, then we will not solve the problem and could waste a lot of money.'' (Statement, Stockholm, 1996.) How are the Bahá'í Teachings on universal education directly related to the AIDS pandemic? Universal education, without a doubt, is also a key factor to ending the AIDS crisis. Until people become educated about basic health issues as well as HIV and AIDS, spread of the virus will not slow. Unfortunately, as a UNAIDS statement reports, "…in the name of morality, culture or religion young people are often denied their right to education about the health risks of sexual and other risk behaviour, and to important social skills, tools and services for protection." (UNAIDS Statement for the World Conference of Ministers Responsible for Youth, Lisbon, Portugal, 8-12 August 1998) This gives us a clue into why "…of the 30 million people alive today with HIV infection or AIDS, at least 10 million are young people aged 10 - 24;" and why "every day an estimated 7,000 young people world-wide acquire the virus. Of these (new and old infections), 85% live in developing countries, which is where more than nine tenths of the epidemic is now concentrated." (Ibid.) Education will also lead to greater productivity, whether in the home or in the workplace, which ultimately leads to greater self-assurance, which can only help foster the recognition of our own nobility. What is going on now in the world seems, so often, to demonstrate our blindness to and even disregard of the possibility of our reality as noble beings. In some countries, for example, there is a belief that HIV- infected men can rid themselves of the virus if they have (unprotected) sex with someone who is uninfected. As a result, young children, even infants, are being raped, and of course, are becoming HIV-infected. On a less severe level, but still very important, AIDS can wear down a person's self-confidence and feelings of self-worth. Often, because of fear of the disease, fear of death, or fear of rejection, or even feelings of shame, some living with AIDS isolate themselves from their family, friends, or community. All this at a time when precisely what one needs is to feel accepted and loved. Scientific studies have proven that acts of love and kindness stimulate the immune system. Seems to me that the Bahá'í Faith is in agreement with that. On a greater level, ‘Abdu'l-Bahá even states, "The body of the human world is sick...Its illumination and quickening is love." I find it interesting that the Bahá'í Writings state, "Anybody can be happy in state of comfort, ease, health, success, pleasure and joy; but if one will be happy and contented in the time of trouble, hardship and prevailing disease, it is the proof of nobility." (Bahá'í World Faith, pp. 363-364) So how do we foster the recognition and understanding of nobility: our own as well as that of those we encounter? Both on a spiritual level and in the physical realm, what do we need? "What you need on this journey is an open heart. When our hearts are open we're able to see past (the) physical...into the beauty of another person's soul. We can listen between angry words and hear a cry for help and love. When our hearts are open we are able to receive, to learn, and to accept the gifts that are laid before us. An open heart is a channel for healing love..." (The Journey Through AIDS, Debra Jarvis, p. 27) But this journey of AIDS isn't only for those who are infected, and those who care for and about them. It's really a journey that all of us are affected by. Now yes, AIDS tends to heighten people's fears of death. It also reminds us how precious life is, and gives us an opportunity to focus on the reality of the soul. And it gives us an opportunity to examine whether we are living life and facing death the way we should be. But should AIDS be our focus, even when we're living with it and affected by it - as some of us are - every moment of every day? Shouldn't our focus be on the Divine, not on the difficulties of this world? "If the Bahá’ís could evaluate their work properly they would see that whereas other forms of relief work are superficial in character, alleviating the sufferings and ills of man for a short time at best, the work they are doing is to lay the foundation of a new Spiritual Order in the world founded on the Word of God, operating according to the Laws he has laid down for this age. No one else can do this work except those who have fully recognized the meaning of the Message of Bahá'u'lláh...The Bahá'ís are building a refuge for mankind. This is their supreme, sacred task and they should devote every moment they can to this task." (Directives of the Guardian, p. 67) As Bahá'ís we have great responsibilities. To carry out our responsibilities we need to sharpen our skills of understanding, attentiveness and compassion. Our vision needs to be clear. People living with AIDS are far too often identified by this illness: People see the disease rather than the person. That has got to stop! We are all noble beings and must, absolutely must, recognize this in each other, and perhaps even learn to identify others by their nobility. At the same time, we cannot hesitate in our walking the spiritual plane with practical feet. There are special needs for individuals as well as communities who are infected with and affected by HIV and AIDS. And we, the Bahá'í community, are a microcosm so affected. Author: K.S. The ideas and opinions expressed in this document are those of the author. The document has been reviewed to be consistent with BNASAA guidelines, but the ideas expressed do not necessarily reflect the opinions or thinking of the BNASAA Coordinating Committee.
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